#AlzAuthors

AlzAuthors is a collaboration between authors to share different works—fiction and nonfiction, for children and adults—that help people understand and cope with dementia and caregiving.

 
Alone we can do so little; together we can do so much.
— Helen Keller

Useful Websites:

AARPwww.aarp.org

Administration on Aging

Alzheimers.net—Contains information, support, inspirational quotes. Thanks to Jeff Anderson for sharing it with us: www.alzheimers.net

Alzheimer’s Reading Room—Well-subscribed blog for caregivers: www.alzheimersreadingroom.com

The Alzheimer’s Store—Unique products to help patients with AD, many for middle and late stages when caregiving becomes more challenging: www.alzstore.com

Clinical Trialswww.clinicaltrials.gov

Karen Garner’s blog—Karen’s husband, Jim, was diagnosed with early-onset AD. Karen writes honestly and compellingly about her journey as a caregiver with children still living at home: www.missingjim.com.

Kris Bakowski’s blog—Kris was diagnosed in her mid-forties with early-onset AD. She journals her daily life, posting many photographs of her family and friends. Her blog is an honest look at the difficulty of coping with dementia: www.creatingmemories.blogspot.com.

Maria Shriver’s website—An uplifting website (and can’t we all use an uplift?) with useful information and resources on caregiving and Alzheimer’s: www.mariashriver.com

Mayo Clinic—Information about Alzheimer’s disease; podcasts, interviews, articles, discussions: http://www.mayoclinic.org/

National Alliance for Caregiving—Comprehensive information for and about caregivers. Hosts Lotsa Helping Hands, a resource to help friends organize: www.caregiving.org

National Institute of Aging—Click here for a number of useful links to information on younger-onset AD.

Nursing Home Abuse Guide.org—This website was brought to my attention by Shannon Roberts, the organization’s Senior Awareness Coordinator. I agree with Shannon that nursing home abuse is a problem we need to be more aware of. The elderly are vulnerable to all kinds of exploitation and mistreatment: nursinghomeabuseguides.org.

Visual Education Center for Family CaregiversShort, well-produced videos that portray the experience of AD through interviews of patients and caregivers. Informative and practical: www.videocaregiving.org
 

Thanks to contributor Bridget Thompson for an article on fraud prevention for seniors: 

Fraud Prevention Checklist

Thanks to David Patterson of Pacific Medical Training for an article on the importance of staying active:

Staying Active in Your Golden Years

Thanks to contributor Lydia Poon of MoneyGeek for this list:

Everything to Know for Family Caregivers

A Guide to Staying Safely at Home

How to Easily Transition to Assisted Living
 

Thanks to Nicole Peters for a website of information on elder abuse:

Nursing Home Abuse Support

 Thanks to contributor Maria Villeza of ElderImpact.org for this list:

Housing Tips and Advice from The National Aging in Place Council

Preventing Falls at Home

Fall Prevention Tips for Seniors | A Home Design Guide

The Benefits of Cooking with Alzheimer’s: A Caregiver’s Guide

14 Ways to Help Seniors Avoid Isolation

Depression in Older Adults and the Elderly

The Ultimate Guide to Rehab and Medicare

A Senior’s Guide to Using Computers and Software

Economic Security for Seniors Facts

Home Safety and Security for Aging-in-Place Seniors

How to Care for Your Aging Parents from a Distance

Meals on Wheels America

The Stress-Free Guide to Selling an Inherited Home

Helping Your Children Adjust to an Elderly Grandparent Moving In

The Ultimate Guide to Home Accommodations for Persons with Disabilities

Summer Skin Care Tips for Seniors

Caregiver Tips for Traveling with the Elderly

The Benefits of Cooking with Alzheimer’s: A Caregiver’s Guide

Caregiver Burnout: How to Recognize, Regroup, & Recoup from Caregiver Stress

Thanks to contributor Patricia Sarmiento of PublicHealthCorps.org for this list: 

Connecting With Alzheimer's Patients -- Even in the Latest Stages of the Disease

101 Activities | Alzheimer’s Association

Alzheimer’s (help with various issues): www.helpguide.org

Home Safety and Alzheimer's

Aging in Place Design & Technology Tips | HomeAdvisor

Room-by-Room Home Safety for People with Alzheimer's Disease

Assistive Technology - Devices to Help with Everyday Living

The 10 Best Cities for Technology-Assisted Living

Senior Loneliness: The Risks of Loneliness and Senior Neglect

Healthy Aging: Preventing Isolation

Aging in Place with a Little Help from Roommates, Neighbors and Teenagers

Depressions is Not a Normal Part of Growing Older

12 Depression Busters for Seniors

Three Unique Ways Seniors Can Conquer Anxiety

Guide to Addiction Prevention for Seniors

Alcohol Consumption in Seniors: A Delicate Balance

Rehab and Medicare: The Ultimate Guide to Addiction Treatment for Seniors

Early-onset Alzheimer’s: When Symptoms Begin Before Age 65

The New Breed of Service Dog: Canine Caregivers for Alzheimer's and Dementia Patients

Thanks to contributor Sara Bell for this list: 

Aging at Home: Common Problems and Solutions

How Seniors are Designing Social Support Networks

The Ultimate Guide to Home Accommodations for Persons with Disabilities

The Benefits of Emotional Support Animals

Guide to Addiction Prevention for Senior

Finding a Family: Discovering Your Queer Community When You’re 65

Dental Care Tips for Caregivers

Recognizing and Treating Depression: A Guide for the Elderly & Their Caregivers

Senior Loneliness: The Risks of Loneliness and Senior Neglect

Healthy Aging: Preventing Isolation

Depression Is Not a Normal Part of Growing Older

12 Depression Busters for Seniors

Three Unique Ways Seniors Can Conquer Anxiety

Guide to Addiction Prevention for Seniors

Alcohol Consumption in Seniors: A Delicate Balance

Rehab and Medicare: The Ultimate Guide to Addiction Treatment for Seniors

Early-onset Alzheimer’s: When Symptoms Begin Before Age 65

The New Breed of Service Dog: Canine Caregivers for Alzheimer's and Dementia Patients


For recent articles on Alzheimer's and brain health, follow @allweatherfrnd on Twitter:

More Good Books:

The Alzheimer’s Action PlanThe Experts’ Guide to the Best Diagnosis and Treatment for Memory Problems, P. Murali Doraiswamy, MD, Lisa P. Gwyther, MSW, and Tina Adler (2008) St. Martin’s Press, 496 pages.Well written guide which helps with medical information and treatment options. Provides practical information on living with AD and strategies for maintaining brain health.

ConnectionsEngagement in Life for Persons Diagnosed with Dementia, Ellen Phipps & Barbara Braddock (2nd EDITION IN PRESS) The Alzheimer’s Association of Central and Western Virginia Chapter, 110 pages. Provides many topics, sentence starters and suggestions, color coded by stage, for engaging people with dementia in activities and conversations. You can quickly find the appropriate sections and gain an understanding of how to provide a safe, enjoyable environment.

Dancing on QuicksandA Gift of Friendship in the Age of Alzheimer’s, Marilyn Mitchell (2002) Johnson Books, 189 pages. Memoir about Mitchell’s lengthy friendship with a man suffering from Alzheimer’s disease. Touching, funny, sympathetic, insightful.

A Grace DisguisedHow the Soul Grows Through Loss, Gerald Sittser, (1995) Zondervan, 184 pages. Memoir about catastrophic loss and the aftermath. Sittser faces his difficult emotions and questions of faith with intelligence and courage, and without glossing over the hard truths. Takes us through his thoughts and feelings and the reclamation of his faith. 

Jan’s StoryLove Lost to the Long Goodbye of Alzheimer’s, Barry Petersen (2010) Behler Publications. About facing early onset Alzheimer’s disease in a life partner. Jan Petersen was only in her 50's when she was diagnosed with Alzheimer's.

Love in the Land of DementiaDeborah Shouse (2013) Central Recovery Press, 192 pages. A daughter’s memoir of her mother’s struggle with Alzheimer’s.  

Making Loss Matter: Creating Meaning in Difficult Times, David Wolpe, (1999) Riverhead Books. Insightful, comforting, wise. Presents the struggle of grief in a clear, confident, compassionate voice. 

The Memory PrescriptionGary Small, MD, with Gigi Vorgan (2011) Hyperion, 370 pages. Comprehensive guide to maintaining brain health. An inspiring motivational tool for changing counterproductive eating and exercising habits.

On Pluto: Inside the Mind of Alzheimer's, by Greg O'Brien (2014) Codfish Press, 240 pages. An investigative reporter's memoir about living with Alzheimer's.  

Passages in CaregivingTurning Chaos Into Confidence, Gail Sheehy (2010) William Morrow, 416 pages. Advice, guidance, resources on caregiving.

Partial ViewAn Alzheimer’s Journal, Cary Henderson, Edited by Jackie Henderson Main and Ruth D. Henderson, Photographed by Nancy Andrews (1998) Southern Methodist University Press, 97 pages. Duke-educated history professor Cary Henderson was diagnosed with AD in his 60's. He documented his experience during the mid-stage using a tape recorder. Transcribed and edited by his wife and his daughter, illustrated with black and white photographs. Sad and lovely book which quickly gives a sense of what living with mid-stage AD is like.

Seven Choices: Finding Daylight After Loss Shatters Your World: Elizabeth Harper Neeld, PhD (1990) Clarkson Potter, Inc., 332 pages. Still relevant 23 years after publication. Powerful and helpful to anyone who must face the loss of a spouse.

100 Simple Things You Can Do to Prevent Alzheimer’s and Age-Related Memory LossJean Carper (2010) Little, Brown & Company, 322 pages. Easy to read and packed with useful information.

Still AliceLisa Genova (2009) Pocket Books, 300 pages. Novel about a college professor with early-onset Alzheimer’s disease. True-to-life and compassionately written, without the bleak ending you might imagine.

Voices of Alzheimer’sBetsy Peterson (2004) Da Capo Press, 255 pages.Collection of quotations from people with Alzheimer’s disease, caregivers and others organized around common themes: the diagnosis, denial, anger, grief, gifts, etc. Reading it seems almost like attending a support group.

What’s Happening to Grandpa? Maria Shriver (2004) Little, Brown Books for Young Readers.

Organizations:

The Alzheimer’s Association: alz.org

The best resource I know for support and information—support groups, social events, fundraising, community resources, a national library of materials; Look up the chapter in your area for a wealth of information and help.

Blondes vs Brunettes: blondesvsbrunettes.org

Group formed to raise awareness of AD among young people; hosts an annual powderpuff football game fundraiser which has contributed over $1M nationally to Alzheimer’s Association chapters; not as much a resource of information as an innovative way to support the Alzheimer’s Association in selected cities; see also the Blondes vs Brunettes Facebook page.