Opinions, Stories, Tips


#AlzAuthors

#AlzAuthors is a collaboration between authors to share different works—fiction and nonfiction, for children and adults—that help people understand and cope with dementia and caregiving.


Articles, Organizations & Websites

General Information

The Alzheimer’s AssociationThe best resource I know for support and information—support groups, social events, fundraising, community resources, a national library of materials; Look up the chapter nearest you.

AARP

Administration on Aging

Alzheimers.net—Information, support, inspirational quotes

Alzheimer’s Reading Room—Well-subscribed blog for caregivers

The Alzheimer’s Store—Unique products to help patients with AD, many products for middle and late stages

Blondes vs Brunettes: blondesvsbrunettes.orgGroup formed to raise awareness of AD among young people; hosts an annual powderpuff football game fundraiser which has contributed over $1M nationally to Alzheimer’s Association chapters; not as much a resource of information as an innovative way to support the Alzheimer’s Association in selected cities; see also the Blondes vs Brunettes Facebook page.

Connecting With Alzheimer's Patients -- Even in the Latest Stages of the Disease

Clinical Trials

Early-onset Alzheimer’s: When Symptoms Begin Before Age 65

Mayo Clinic—Information about Alzheimer’s disease; podcasts, interviews, articles, discussions

National Institute of Aging

Blogs

Karen Garner—Karen’s husband, Jim, was diagnosed with early-onset AD. Karen writes honestly and compellingly about her journey as a caregiver with children still living at home

Kris Bakowski—Kris was diagnosed in her mid-forties with early-onset AD. She journals her daily life, posting many photographs of her family and friends. Her blog is an honest look at the difficulty of coping with dementia

Maria Shriver—An uplifting website (and can’t we all use an uplift?) with useful information and resources on caregiving and Alzheimer’s, as well as life in general

Caregiving

Alzheimer’s (help with various issues): www.helpguide.org

The Benefits of Cooking with Alzheimer’s: A Caregiver’s Guide

Caregiver Burnout: How to Recognize, Regroup, & Recoup from Caregiver Stress

Caregiver Tips for Traveling with the Elderly

Connecting With Alzheimer's Patients -- Even in the Latest Stages of the Disease

Dementia and Hygiene: How to Solve Hygiene Problems Common to People with Dementia

Dental Care Tips for Caregivers

Everything to Know for Family Caregivers

How to Care for Your Aging Parents from a Distance

Meals on Wheels America

Summer Skin Care Tips for Seniors

National Alliance for Caregiving—Comprehensive information for and about caregivers. Hosts Lotsa Helping Hands, a resource to help friends organize

The New Breed of Service Dog: Canine Caregivers for Alzheimer's and Dementia Patients

101 Activities | Alzheimer’s Association

Visual Education Center for Family Caregivers—Short, well-produced videos that portray the experience of AD through interviews of patients and caregivers. Informative and practical

The Ultimate Guide to Rehab and Medicare

Emotional Support 

The Benefits of Emotional Support Animals

https://cbdoilsandedibles.com (I spent some time reviewing this website. While not mainstream, the information is compelling and might provide another approach, worth discussing with your physician, to some of the problems of dementia. In my experience, relief can be found sometimes by thinking and looking "outside the box." Here are two references from the website: https://www.ncbi.nlm.nih.gov/pubmed/22129319, https://www.ncbi.nlm.nih.gov/pubmed/17713029).

Depression Is Not a Part of Growing Older

Depression in Older Adults and the Elderly

Drug Abuse Treatment and Recovery

14 Ways to Help Seniors Avoid Isolation

Guide to Addiction Prevention for Seniors

Healthy Aging: Preventing Isolation

Helping Alzheimer’s Sufferers Cope with the Loss of a Loved One — A Guide for Caregivers

How Seniors are Designing Social Support Networks

Alzheimer’s and Keeping Active/Involved

Senior Loneliness: The Risks of Loneliness and Senior Neglect

Staying Active in Your Golden Years

Recognizing and Treating Depression: A Guide for the Elderly & Their Caregivers

Rehab and Medicare: The Ultimate Guide to Addiction Treatment for Seniors

Three Unique Ways Seniors Can Conquer Anxiety

6 Signs of Elder Abuse in Seniors with Dementia

12 Depression Busters for Seniors

Finances

Alzheimer’s, Dementia and Money Management

Economic Security for Seniors Facts

Financial Education for Older Adults

Fraud Prevention Checklist

The Simple Dollar: Taking Over Your Aging Parents' Finances, by Barry Bridges

The Stress-Free Guide to Selling an Inherited Home

Housing and Safety

Aging at Home: Common Problems and Solutions

Aging in Place Design & Technology Tips | HomeAdvisor
Aging in Place with a Little Help from Roommates, Neighbors and Teenagers

Alcohol Consumption in Seniors: A Delicate Balance

Budget-Friendly Smart Home Accommodations for Seniors and Individuals with Special Needs

Fall Prevention Tips for Seniors | A Home Design Guide

A Guide to Helping Senior Citizens Stay at Home

Helping Your Children Adjust to an Elderly Grandparent Moving In

How to Easily Transition to Assisted Living

Home Safety and Alzheimer's

Home Safety and Security for Aging-in-Place Seniors

A Guide to Staying Safely at Home

Housing Tips and Advice from The National Aging in Place Council

NursingHomeAbuseCenter.comNursingHomeAbuse.org

Nursing Home Abuse Support

Nursing Home Abuse Guide.org

Preparing Your Home for a Loved One with Alzheimer’s: A Caregiver’s Guide

Preventing Falls at Home

Room-by-Room Home Safety for People with Alzheimer's Disease

6 Signs of Elder Abuse in Seniors with Dementia

The Ultimate Guide to Home Accommodations for Persons with Disabilities

Technology

Assistive Technology - Devices to Help with Everyday Living

A Senior’s Guide to Using Computers and Software

The 10 Best Cities for Technology-Assisted Living

Many thanks to these contributors

Jeff Anderson
Sara Bell
Michelle Billick of GoodCall
Julie Dunlap of The Simple Dollar
David Patterson of Pacific Medical Training
Jessie Morales
Ashley Peters, Nursing Home Abuse Center
Nicole Peters
Lydia Poon of Money Geek
Shannon Roberts
Patricia Sarmiento of PublicHealthCorps.org
Bridget Thompson
Marie Villeza of ElderImpact.org


 

 


@allweatherfrnd on Twitter


Good Books

The Alzheimer’s Action PlanThe Experts’ Guide to the Best Diagnosis and Treatment for Memory Problems, P. Murali Doraiswamy, MD, Lisa P. Gwyther, MSW, and Tina Adler (2008) St. Martin’s Press, 496 pages.Well written guide which helps with medical information and treatment options. Provides practical information on living with AD and strategies for maintaining brain health.

ConnectionsEngagement in Life for Persons Diagnosed with Dementia, Ellen Phipps & Barbara Braddock (2nd EDITION IN PRESS) The Alzheimer’s Association of Central and Western Virginia Chapter, 110 pages. Provides many topics, sentence starters and suggestions, color coded by stage, for engaging people with dementia in activities and conversations. You can quickly find the appropriate sections and gain an understanding of how to provide a safe, enjoyable environment.

Dancing on QuicksandA Gift of Friendship in the Age of Alzheimer’s, Marilyn Mitchell (2002) Johnson Books, 189 pages. Memoir about Mitchell’s lengthy friendship with a man suffering from Alzheimer’s disease. Touching, funny, sympathetic, insightful.

A Grace DisguisedHow the Soul Grows Through Loss, Gerald Sittser, (1995) Zondervan, 184 pages. Memoir about catastrophic loss and the aftermath. Sittser faces his difficult emotions and questions of faith with intelligence and courage, and without glossing over the hard truths. Takes us through his thoughts and feelings and the reclamation of his faith. 

Jan’s StoryLove Lost to the Long Goodbye of Alzheimer’s, Barry Petersen (2010) Behler Publications. About facing early onset Alzheimer’s disease in a life partner. Jan Petersen was only in her 50's when she was diagnosed with Alzheimer's.

Love in the Land of DementiaDeborah Shouse (2013) Central Recovery Press, 192 pages. A daughter’s memoir of her mother’s struggle with Alzheimer’s.  

Making Loss Matter: Creating Meaning in Difficult Times, David Wolpe, (1999) Riverhead Books. Insightful, comforting, wise. Presents the struggle of grief in a clear, confident, compassionate voice. 

The Memory PrescriptionGary Small, MD, with Gigi Vorgan (2011) Hyperion, 370 pages. Comprehensive guide to maintaining brain health. An inspiring motivational tool for changing counterproductive eating and exercising habits.

On Pluto: Inside the Mind of Alzheimer's, by Greg O'Brien (2014) Codfish Press, 240 pages. An investigative reporter's memoir about living with Alzheimer's.  

Passages in CaregivingTurning Chaos Into Confidence, Gail Sheehy (2010) William Morrow, 416 pages. Advice, guidance, resources on caregiving.

Partial ViewAn Alzheimer’s Journal, Cary Henderson, Edited by Jackie Henderson Main and Ruth D. Henderson, Photographed by Nancy Andrews (1998) Southern Methodist University Press, 97 pages. Duke-educated history professor Cary Henderson was diagnosed with AD in his 60's. He documented his experience during the mid-stage using a tape recorder. Transcribed and edited by his wife and his daughter, illustrated with black and white photographs. Sad and lovely book which quickly gives a sense of what living with mid-stage AD is like.

Seven Choices: Finding Daylight After Loss Shatters Your World: Elizabeth Harper Neeld, PhD (1990) Clarkson Potter, Inc., 332 pages. Still relevant 23 years after publication. Powerful and helpful to anyone who must face the loss of a spouse.

100 Simple Things You Can Do to Prevent Alzheimer’s and Age-Related Memory LossJean Carper (2010) Little, Brown & Company, 322 pages. Easy to read and packed with useful information.

Still AliceLisa Genova (2009) Pocket Books, 300 pages. Novel about a college professor with early-onset Alzheimer’s disease. True-to-life and compassionately written, without the bleak ending you might imagine.

Voices of Alzheimer’sBetsy Peterson (2004) Da Capo Press, 255 pages.Collection of quotations from people with Alzheimer’s disease, caregivers and others organized around common themes: the diagnosis, denial, anger, grief, gifts, etc. Reading it seems almost like attending a support group.

What’s Happening to Grandpa? Maria Shriver (2004) Little, Brown Books for Young Readers.

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